{"id":14201,"date":"2026-10-11T13:45:48","date_gmt":"2026-10-11T11:45:48","guid":{"rendered":"https:\/\/www.afaf.asso.fr\/?page_id=14201"},"modified":"2026-10-12T09:24:08","modified_gmt":"2026-10-12T07:24:08","slug":"enquetes","status":"publish","type":"page","link":"https:\/\/www.afaf.asso.fr\/lassociation\/enquetes\/","title":{"rendered":"Enqu\u00eates"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"14201\" class=\"elementor elementor-14201\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6338cd8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6338cd8\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4678a0c\" data-id=\"4678a0c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ee40a8b elementor-widget elementor-widget-text-editor\" data-id=\"ee40a8b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L&#8217;Association Fran\u00e7aise de l\u2019Ataxie de Friedreich r\u00e9alise des enqu\u00eates aupr\u00e8s de ses adh\u00e9rents, notamment dans le cadre de la voix du patient, mais aussi des enqu\u00eates en vie r\u00e9elle. Cette page pr\u00e9sente dans un premier temps les enqu\u00eates en vie r\u00e9elle faites par l&#8217;AFAF depuis 2023.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5f115fa lien-ancre elementor-widget elementor-widget-text-editor\" data-id=\"5f115fa\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul>\n \t<li><a href=\"#vie-reelle\">Enqu\u00eates en vie r\u00e9elle<\/a><\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-23ce383 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"23ce383\" data-element_type=\"section\" data-e-type=\"section\" id=\"vie-reelle\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-2dfd7c1\" data-id=\"2dfd7c1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f81f27a elementor-widget elementor-widget-heading\" data-id=\"f81f27a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Enqu\u00eates en vie r\u00e9elle<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a973d90 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"a973d90\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-f90e874 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f90e874\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-e13567d\" data-id=\"e13567d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d65b7ca elementor-widget elementor-widget-text-editor\" data-id=\"d65b7ca\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>Entretiens non directifs sur les effets de omaveloxolone apr\u00e8s moins de 9 mois de traitement<\/h3><ul><li>Entretiens non directifs sur les ressentis en vie r\u00e9elle de patients prenant le Skyclarys<\/li><li>Avril &#8211; mai 2024<\/li><li>9 adh\u00e9rents AFAF volontaires<\/li><\/ul><p><strong>Diffusion<\/strong><\/p><ul><li>poster au congr\u00e8s ICAR 2024 , 12-15 novembre, Londres.<\/li><\/ul><p><strong>Utilisation pour un dossier HAS<\/strong><\/p><ul><li>Pour le dossier d\u2019inscription au remboursement Skyclarys 2024<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-c5e0af3\" data-id=\"c5e0af3\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d6d8bd1 elementor-widget elementor-widget-text-editor\" data-id=\"d6d8bd1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Documents associ\u00e9s<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c78759e elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"c78759e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2620826 pdf2-colonne-laterale nouvelle-fenetre elementor-widget elementor-widget-text-editor\" data-id=\"2620826\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/01_French-patients-experiences-following-treatment-with-Skyclarys-omaveloxolone-a-qualitative-approach_AFAF.pdf\" target=\"_blank\" rel=\"noopener\">Poster ICAR 2024<\/a><\/li><li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/02_skyclarys_contribution_afaf_ct20800.pdf\" target=\"_blank\" rel=\"noopener\">Contribution au dossier d&#8217;inscription de remboursement <\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-7bfb396 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7bfb396\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-228c938\" data-id=\"228c938\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7b78d35 elementor-widget elementor-widget-text-editor\" data-id=\"7b78d35\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>Ressentis en vie r\u00e9elle apr\u00e8s 2 semaines \u00e0 11 mois de traitement par omaveloxolone<\/h3><ul><li>Enqu\u00eate quantitative : questionnaire structur\u00e9 pour recueillir des donn\u00e9es structur\u00e9es sur les effets de Skyclarys (impact sur les sympt\u00f4mes, effets ind\u00e9sirables&#8230;.) et des ressentis (commentaires libres), de 2 semaines \u00e0 11 mois de traitement.<\/li><li>octobre- novembre 2024<\/li><li>109 participants adh\u00e9rents \u00e0 l\u2019AFAF<\/li><\/ul><p><strong>Diffusion<\/strong><\/p><ul><li>Poster aux congr\u00e8s Rare 2025, Paris 7-8 octobre 2025.<\/li><\/ul><p><strong>Utilisation pour un dossier HAS<\/strong><\/p><ul><li>Rapport fourni \u00e0 la HAS en janvier 2025 comme compl\u00e9ment d\u2019information pour le 1er renouvellement de l\u2019Acc\u00e8s Pr\u00e9coce<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-9703fa3\" data-id=\"9703fa3\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2e714d4 elementor-widget elementor-widget-text-editor\" data-id=\"2e714d4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Documents associ\u00e9s<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fa7edcd elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"fa7edcd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f300ebf pdf2-colonne-laterale nouvelle-fenetre elementor-widget elementor-widget-text-editor\" data-id=\"f300ebf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/03_AFAF-Rapport-enquete-Skyclarys-de-Nov2024_VFmars2025.pdf\" target=\"_blank\" rel=\"noopener\">Rapport d&#8217;\u00e9tude<\/a><\/li>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/04_Poster-Ressentis-en-vie-reelle-de-patients-atteints-de-lAF-traites-avec-omav_AFAF-RARE25-Paris.pdf\" target=\"_blank\" rel=\"noopener\">Poster au congr\u00e8s Rare 2025<\/a><\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-b7de55f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b7de55f\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-47dc659\" data-id=\"47dc659\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-23c413d elementor-widget elementor-widget-text-editor\" data-id=\"23c413d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>Ressentis en vie r\u00e9elle avant et apr\u00e8s 1 an de traitement par omaveloxolone<\/h3><ul><li>Enqu\u00eate quantitative juin 2025 : questionnaire structur\u00e9 pour recueillir des donn\u00e9es structur\u00e9es sur les effets de Skyclarys (impact sur les sympt\u00f4mes, effets ind\u00e9sirables&#8230;.) et des ressentis (commentaires libres) avant et apr\u00e8s 1 an de traitement.<\/li><li>D&#8217;avantage de questions qu&#8217;en 2024<\/li><li>Juin 2025<\/li><li>142 participants adh\u00e9rents et non adh\u00e9rents AFAF<\/li><\/ul><p><strong>Diffusion<\/strong><\/p><ul><li>poster aux congr\u00e8s World Orphan Drug Congress 2025, Amsterdam 27-29 October 2025<\/li><li>pr\u00e9sentation \u00e0 la International Ataxia Patient Conference, hosted by Euro-ataxia, Amsterdam, 28-29 October 2025\u00a0<\/li><li>\u00e0 venir : poster \u00e0 pr\u00e9senter \u00e0 ICAR 2026, Atlanta US, 10-13 novembre 2026\u00a0<\/li><\/ul><p><strong>Utilisation pour un dossier HAS<\/strong><\/p><ul><li>r\u00e9sultats pr\u00e9liminaires de l\u2019enqu\u00eate utilis\u00e9s pour la nouvelle soumission de la demande d&#8217;\u00e9valuation en vue d&#8217;un remboursement, ao\u00fbt 2025<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-a8ba416\" data-id=\"a8ba416\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-69339b8 elementor-widget elementor-widget-text-editor\" data-id=\"69339b8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Documents associ\u00e9s<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cd8ba31 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"cd8ba31\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bc66ca6 pdf2-colonne-laterale nouvelle-fenetre elementor-widget elementor-widget-text-editor\" data-id=\"bc66ca6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/05_AFAF-Rapport-enquete-Skyclarys-de-juin2025.pdf\" target=\"_blank\" rel=\"noopener\">Rapport d&#8217;\u00e9tude<\/a><\/li>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/06_WODC-2025_Amsterdam__AFAF-Poster_Experiences-Perceptions-FA-ptsSK.pdf\" target=\"_blank\" rel=\"noopener\">Poster aux congr\u00e8s World Orphan Drug Congress 2025, Amsterdam 27-29 October 2025<\/a><\/li>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/07_Perceptions-experiences-FA-pts-example-of-France-in-HTA-process_AFAF.pdf\" target=\"_blank\" rel=\"noopener\">Pr\u00e9sentation \u00e0 la International Ataxia Patient Conference, Amsterdam, 28-29 October 2025<\/a><\/li>\n \t<li><a href=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/2026\/10\/08_Experiences-and-perceptions-of-patients-with-Friedreich-ataxia-treated-with-omaveloxolone-Skyclarys-in-France.pdf\" target=\"_blank\" rel=\"noopener\">A venir : poster \u00e0 pr\u00e9senter \u00e0 ICAR 2026, Atlanta US, 10-13 novembre 2026 <\/a><\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8b9661f elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"8b9661f\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-40214b2\" data-id=\"40214b2\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d31c840 elementor-widget elementor-widget-shortcode\" data-id=\"d31c840\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\">\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"578\" class=\"elementor elementor-578\" data-elementor-post-type=\"oceanwp_library\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-43c347e elementor-section-stretched elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"43c347e\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-186798c\" data-id=\"186798c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-04bb719 elementor-widget elementor-widget-image\" data-id=\"04bb719\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.afaf.asso.fr\/wp-content\/uploads\/elementor\/thumbs\/Logo-blanc_simple-1-q1ww1nh0svlc8x6kbcgbj84qq17mf0pfy8gdrayk1s.png\" title=\"Logo blanc_simple\" alt=\"logo AFAF (Association Fran\u00e7aise Ataxie Friedreich)\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-301d943\" data-id=\"301d943\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2b47be8 elementor-widget elementor-widget-text-editor\" data-id=\"2b47be8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Avancer ensemble,<\/p><p>C&#8217;est aussi pouvoir compter sur votre aide !<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a663678 elementor-align-left elementor-mobile-align-left elementor-widget elementor-widget-button\" data-id=\"a663678\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-lg elementor-animation-grow\" href=\"https:\/\/www.afaf.asso.fr\/nous-soutenir\/donner\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Je fais un don<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>L&#8217;Association Fran\u00e7aise de l\u2019Ataxie de Friedreich r\u00e9alise des enqu\u00eates aupr\u00e8s de ses adh\u00e9rents, notamment dans le cadre de la voix du patient, mais aussi des enqu\u00eates en vie r\u00e9elle. Cette page pr\u00e9sente dans un premier temps les enqu\u00eates en vie r\u00e9elle faites par l&#8217;AFAF depuis 2023. Enqu\u00eates en vie r\u00e9elle Enqu\u00eates en vie r\u00e9elle Entretiens [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":620,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"ocean_front_end_style_editor":"no","ocean_post_layout":"full-screen","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"0","ocean_second_sidebar":"0","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"0","ocean_custom_header_template":"0","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"0","ocean_menu_typo_font_family":"0","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"enable","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"on","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"0","footnotes":""},"class_list":["post-14201","page","type-page","status-publish","hentry","entry","owp-thumbs-layout-horizontal","owp-btn-normal","owp-tabs-layout-section","has-no-thumbnails"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Enqu\u00eates - Association Fran\u00e7aise Ataxie de Friedreich<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.afaf.asso.fr\/lassociation\/enquetes\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Enqu\u00eates - Association Fran\u00e7aise Ataxie de Friedreich\" \/>\n<meta property=\"og:description\" content=\"L&#8217;Association Fran\u00e7aise de l\u2019Ataxie de Friedreich r\u00e9alise des enqu\u00eates aupr\u00e8s de ses adh\u00e9rents, notamment dans le cadre de la voix du patient, mais aussi des enqu\u00eates en vie r\u00e9elle. 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